The past few days have been tough on Olivia (and to be honest, my husband and I). Reflux pain, vomiting and many sleepless nights has drained her completely. We never see these flare ups coming and when they do, it could be a day or days before she is over it. It usually entails one of us, myself or my husband, sleeping with her to make sure she doesn’t choke from vomiting in her sleep, positioning her throughout the night to lessen the pain on her abdomen, and giving her reflux meds and pain meds around the clock, hoping to relieve some of the pain she’s feeling.
One of the many linked conditions to Cerebral Palsy is poor digestion. Because CP affects all muscle function and control, the digestive system which is made up of soft muscle tissue is highly affected by this, leaving Olivia with gastroesophageal reflux disease (GERD) and other issues surrounding her entire digestive system.
It’s during times like this I wish it were possible to switch places with her. It kills me watching her go through this.
Medications offer little relief; instead excessive vomiting caused by mucus from her nasal passages that pools into her throat and chest, keeps this unending vomit cycle going, that in turn produces more acids affecting her reflux. You can understand our frustration.
And yet, despite it all, she still smiles and although completely exhausted, wants to play!
This kid blows me away! She is such a trooper, as biased as that may sound because she’s mine, she honestly is one tough cookie. With everything this little munchkin has endured in her five years, she keeps persevering.
As I sit here rocking her in my lap, listening to her finally sleeping peacefully, and tears in my eyes; I know that tomorrow could be a better day. I know that despite these last few difficult, completely exhausting days; it won’t last forever. The medications will eventually begin to work and Olivia will be her vibrant, happy and funny self again.