It’s More Than Just Wearing Green

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Why are awareness days so important? What makes them so special? Why do we put the spotlight on a particular group of people?

I’ll tell you why…

The only way to successfully eliminate ignorance, discrimination and inequality is through education. Awareness days are opportunities to discuss, teach and learn about others who may look, speak, walk, or learn differently from us. As a society, we have been conditioned to take notice of other people’s differences. For individuals like my daughter, having these differences cause her to stand out; sometimes generating whispers, stares, or abrupt spontaneous questions (often asked nervously).

Awareness days like World Cerebral Palsy Awareness or National Cerebral Palsy Awareness Day, allows us to start the conversation, eliminating the so called “elephant in the room”. It’s an opportunity to speak about what CP is and how there are many people who have it, that are living very fulfilling lives, participating in various aspects of society. It gives us the opportunity to speak about various types of equipment you may see someone with CP using, like a wheelchair; and understand that this device assists with the individual’s quality of life.

Awareness days can inspire us to invent or develop better devices and services to assist and improve the life of individuals living with CP. These days encourage others to look beyond the limitations or challenges and see the person.

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In this day and age of fully integrated classrooms and full inclusion in recreational activities; awareness days are absolutely essential, especially for school age children because they are the future generation. It’s not just about wearing green or whatever color is associated with a specific ribbon of an awareness day, it’s about WHY are we doing this? It’s about promoting equality and understanding one another. Fear is such a natural feeling that can occur when we are faced with something or someone that appears very different from us. Learning about these differences and understanding that we really aren’t that different, helps to strengthen bonds and allow relationships to develop easier. By eliminating the boundaries we create equality.

So the next time you hear about an event promoting World CP Awareness or World Down Syndrome Day or any day set aside to educate, celebrate and promote equality; take a few minutes to stop, listen and learn. At the end of the day, all anyone wants is to be seen for themselves, not judged by what they appear to be.

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Wonderful Wednesday

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We’ve been weathering through a few storms these last few weeks. Discovering that Olivia has epilepsy, our basement flooding, a serious lack of sleep, disputing a suspension from school notice issued through our public health office stating Olivia is behind on a particular vaccine (which she isn’t), and hitting a few bumps in the road with Olivia’s rehabilitation team; had me rock bottom, flat on my back, burnt out.

The first Wednesday of every month is a glorious day! This is when our special needs parents support group meets. I couldn’t have been more thankful for the arrival of this Wednesday. Being surrounded by others who get what you’re going through evokes a feeling of calm, peace and understanding. Sure not all of us share the exact same experiences, but to an extent we’ve each walked in the footsteps of the same path. It’s this, in its entirety, that makes support group so great.

The problems I had going into the group were not miraculously solved. That’s not what the group is for. What I get from going to our group, is a sense of peace. Talking, connecting and listening to other special needs parents share their experiences, helps me to remember that although this journey can be extremely difficult and challenging, I am not alone. Just the fact that they get it, calms my mind and I can readjust my focus. I feel a rejuvenation and walk away empowered, ready to face the hurdles that lie ahead.

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