What Will Tomorrow Bring?

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I think the hardest thing about being a parent is accepting no matter how badly you want to, you will never be able to give your child everything they need.

I’ve known this reality since the day of Olivia’s diagnosis, but I never truly accepted it. I guess somewhat, in a distant part of my mind, denial became my safety net.  By not fully accepting the diagnosis, maybe cerebral palsy wouldn’t affect her to the capacity predicted. 

I know it sounds completely crazy, but as a parent, how do you wholeheartedly accept that your child will have limitations for the rest of their life? You might put your best face forward and learn everything there is to know about the future possibilities. You attend all the therapy appointments, physician consults, support meetings, etc, etc, etc. You become an advocate, bringing awareness and blogging about raising a child with cerebral palsy. You do the absolute best, that you possibly can; to understand everything there is to know about this incredibly selfish condition, that has robbed your child of their independence.

It’s been a bit of a high wire act finding the balance between all of it. In the end, hope is all you have left.

Hope is an incredible gift. It has the ability to inspire and fulfill the sometimes empty feelings of despair. It’s not fueling your mind of miraculous occurrences because that would be setting yourself up for a big let down. Hope is allowing yourself to believe that tomorrow has possibility. Tomorrow a cure could be found. Tomorrow a technological breakthrough could discover a way to give my daughter her legs back. Tomorrow, maybe just maybe, cerebral palsy won’t touch another family.

#hopefaithlovecerebralpalsyawareness

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Educational Assistants a.k.a “Miracle Workers”

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This post is dedicated to two women  I feel are angels on Earth.  They are my daughter’s Educational Assistants.   I feel these women get overlooked for the truly remarkable job they are doing.  If you asked them,  they wouldn’t call it a job…they do it because they love the kids they are helping. Well I am pretty damn grateful my kid has these ladies!

When my husband and I decided we were sending Olivia to school in September, it was a decision that didn’t come easy. We feared for our nonverbal, vulnerable little girl.  Would she be understood? Would she be treated with love, kindness and respect? How would she make friends?

The two women who were assigned to care and support Olivia at school would become more than just her educational assistants, in our hearts, they became her angels. These women go above and beyond everyday, not because they are “just doing their jobs”, but because they care.  These people are unappreciated miracle workers! They see the ability in our kids and help them to achieve and succeed.  I see the joy they bring to Olivia everyday in the smile on her face and the excited giggles in her laugh.  I see a new sense of independence in my little girl’s eyes because they worked relentlessly to help her learn to grasp a crayon, in which she struggled so much before.  I see how easily Olivia has been accepted by her peers because they encourage the children to interact and participate in Olivia’s activities. And most important I see the pride and admiration these beautiful women share with us, when Olivia has overcome a challenging hurdle.  

Ladies, in case you have not been told enough, I APPRECIATE YOU! I thank you for the remarkable work you do each and everyday, for the compassion and love you show our daughter, to the relentless hours you commit to helping her succeed, for the grace and kindness you share with her.  You will both forever hold a special place in our hearts.
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